Showing posts with label bank cord blood. Show all posts
Showing posts with label bank cord blood. Show all posts

Tuesday, March 6, 2012

The Story of a Little Brother

I spent part of this week writing out B's birth story and NICU stay. It's seven pages, y'all. I wasn't sure exactly how to draft it via blog without making you read for hours. That's why it's taken me so long.

So here we go. Here's B's birth story.

The Beginning - Wednesday, February 22nd.

I spent the day at work. I was training my replacement and planned to complete my final day before B’s arrival (induction scheduled for 2/29/12) on Friday the 24th. Things didn’t quite go as planned. Like they ever do! Lunch at 12:15 consisted of a PBJ, string cheese, and celery sticks. I scooted out to my routine OB appt. after work at 3:15 and my husband came with me. He hadn’t been coming to all of them, but he came this time in case there was any chance we might be getting an earlier induction. I had my last NST on Monday the 20th and was set to have another NST on Thursday the 23rd. 

My OB appt. yielded some surprising results. My OB told me that she thought we needed to head right on over to labor and delivery (like right then) and start my induction. I was 36w6d. The reasons in her recommending were the following: our history of unexplained loss, excessive amniotic fluid discovered during a BPP at the Perinatologist’s office during my NSTs (like over the high level) which could cause the cord to come first if I my water were to break and a potential demise, being 3cm dilated, having Braxton Hicks contractions every 3 minutes, and the fact that B hadn’t been moving a ton and scoring 8/10 on his last two NST/BPPs. The concern was that he was scoring 10/10 for weeks and then started scoring 8/10. Considering all we’ve been through, the logical choice was to induce. Of course, we knew that also had risks. For one, he would be barely term and likely have some symptoms of a preterm baby—mainly lung immaturity. They don’t give steroid shots to babies past 34 weeks… so that wasn’t an option. We just had to hope for the best. I was also at risk of an emergency c-section (though not a terrible thing if successful) since my water breaking could mean the cord rushes out. But the likelihood of having a live baby was good… so we decided to induce a week before our scheduled induction date. We were meant to have a leap year baby, but he was coming much sooner. My OB wanted me to head straight to L&D, but I wanted a shower and to pack some things since we had nothing ready. We headed home (3.5 miles from the hospital) and packed things in a fury. I took a shower and we were off. We were home maybe 30 minutes tops. And who was she kidding? I wasn’t about to walk through the doors of that hospital and into Labor and Delivery without my husband. I could not do this alone.

We arrived at the hospital close to 5 p.m. I sent an email at 4:33 p.m. to some BLM friends to let them know. To say that we were terrified was an understatement. There were tears of fear and excitement in the car. Tears about going into labor and delivery where Andrew was born and where we said goodbye. Where we had our 24-week scare with B. Where we had our D&C after the miscarriage in June. We’ve never had good news there… but were hoping this experience would be different. I made sure that the awful doctor who delivered Andrew and dealt with our miscarriage was not the on-call doctor. She wasn’t. Phew. We were checked into the room closest to the OR just in case the cord were to come first after they broke my water. There wasn’t a single other patient in L&D that evening. I was grateful.

It starts.

Our first nurse was also our discharge nurse during our stay with Andrew. It was only fitting that she checked us back in for the birth of our second son. She attends the same church and has mutual friends. She also shared some intimate moments with us about her own grief journey this past year and let us know she was praying for us. She started me on pitocin around 5:30 and my contractions were growing stronger. B’s heartbeat was strong but at times would send us freaking out because he would move or the belt would shift. Ray and I would not take our eyes off the thing for the entire induction process. No joke. One of us had to be watching it the entire time, despite the nurses assuring us that there were two additional nurses monitoring his heartrate.


The delivering doctor came in (who also performed my D&C…lovely) and broke my water. What a weird feeling! With Andrew, I didn’t feel it because it happened as I was pushing. Because I had an abundant amount of fluid, they were literally fishing it out for minutes upon minutes. I asked how much water at one point and my doctor told me that a gallon wouldn’t be unreasonable. No cord came. Phew. Around 9 p.m. I was around 6cm dilated and still feeling pretty great. I didn’t need the epidural quite yet, but I knew that it would only be a matter of time and the nurse kept asking if I wanted it. What I really wanted was to pee… and I knew a catheter would be administered along with the epi. Around 9:20 p.m., the anesthesiologist came on in and made sure to stick me (twice) and finally managed to get that epidural moving.

I started pushing around 12:10 a.m. and had 9 full contractions of pushing before B was born at 12:42 a.m. on February 23, 2012. He was born at just barely 37 weeks. 19 inches long and 7lb. 6oz. Andrew was the exact same weight. <3 We heard him cry and it was quite possibly the best sound I’ve ever heard. Ray was over taking photos while the nurse was handling all of the cleaning, vitals, and measurements.


B had arrived. But all was not well. Again.

About 2 hours later after skin-to-skin time and we were all cleaned up, we were wheeled down to Mother-Baby for the first time. We had never been down this hall. After having Andrew, we stayed in L&D the entire time until we were discharged. The nurse was extremely sensitive to our needs and took us down a back hallway and away from our dreaded delivery room where we said goodbye to Andrew.

Transition to Mother-Baby. But not for long.

Once in Mother-Baby, things were going well… until they weren’t. Again. He had his first bath... Ray took photos and then headed down to the cafeteria to grab something to eat.

I surrender!


I pity the fool who tries to mess with my mama.
The nurse then wheeled B down to the nursery to take his vitals around 6 a.m. It seemed like a long time, so I sent Ray out to check on him. Right there in the nursery was the neonatologist and a team of nurses surrounding his bassinet. Something was wrong. It turns out B started choking in the nursery and they had to save him. Save his life. They took him down to the NICU for monitoring after because it’s protocol to keep a child for 6 hours after an “episode” occurs. He had his second choking episode in the NICU. He was officially admitted at that point. This is where they asked my permission to give him formula.

And this is where I lost it. 

I was a full-on mess of emotions. My first son died. My second son nearly died. And now they admitted him to the NICU and are giving him formula. Formula is obviously not the devil, but when you envisioned this perfect skin-to-skin and rooming-in time with your baby and they have now taken him away because he is sick and can no longer be in contact with his mom… it’s very emotional. I felt like that was the last straw in having no control.

Once admitted to the NICU, they performed an x-ray on his lungs. Leave it to me to be in the 1% again. Born at just 37 weeks (full term) B was diagnosed with Transient Tachypnea of the Newborn (TTN). Basically, it’s fluid in the lungs that wasn't able to be fully extracted as he exited the birth canal and because he was slightly pre-term. There are no long term effects and it is usually gone within 72 hours, especially with the assistance of forced oxygen via tube. Once diagnosed, they inserted the oxygen tube and hooked him up to 25% forced oxygen (we breathe 21%). They slowly weaned him off the oxygen as time progressed and his breathing began to improve over the course of the next two days.

Does this look comfortable to you? Didn't think so.
Vitals: Heartrate, breaths, oxygen level
Once in the NICU, B needed  to go 24-48 hours under observation without any drop in his blood oxygen level before they would release him after they removed the oxygen. Because B was considered preterm and was not breathing properly at birth, this caused him to struggle with feeding—because the body can only handle one fight at a time. He was given a feeding tube in the NICU that they were feeding formula into—Gerber Good Start Gentle. I had lots of tears over this. They asked my permission to feed him and despite wanting him to be an entirely breastfed baby, I knew he was also fighting for his life and should not be deprived of nutrients that could help his lungs and body heal faster. He only used the feeding tube a handful of times in the NICU, but it still hurt watching them put the tube down through his nose. Seeing your brand new baby fight for his life is simply terrifying. In the meantime, I was seeing a lactation consultant between B’s feedings (of which we were at every single one) to assist with pumping. She even visited the NICU during his feeding a few times to assist with latching (of which didn’t go so well… but I learned quite a few techniques to use with a young baby). He was also fed colostrum in addition to the formula. Our schedule the entire time he was in the NICU consisted of the following:
  • Go to B’s feedings—change his diaper, bathe him, hold him, and put him to breast… then feed via bottle or tube with breastmilk and formula.
  • After about an hour, leave to go pump back in our room at Mother-Baby.
  • Interruptions by various doctors, consultants and nurses.
  • Sleep for about 1.5 hours. Rinse. Repeat.
Andrew was never far away.

This of course was only until we were discharged from Mother-Baby. That story to come later. We really envisioned having our son room-in with us. I even wrote countless emails to my fellow babyloss friends during my pregnancy about how terrified I was that they would take him away from me after I delivered. I was induced, so it was partly my fault, but I could very well be typing another demise story had we not induced either. It’s tricky. In addition to not rooming-in with our son as we envisioned, we were forced to walk by the room I delivered Andrew every single time we went to visit B in the NICU. Room 120. On the corner, just down the hall from Mother-Baby. We walked by about 20 times a day, at least. A room I never wanted to go near again. Ever. 

Unfair connections.

On B’s second day in the NICU, we walked by Andrew’s room and then the room next door… and I saw something all too familiar. A falling leaf on the door of a room in Labor and Delivery. That same falling leaf was taped to our door after delivering Andrew stillborn. There was a couple behind those closed doors that lost their baby and I walked by visiting my (living) son in the NICU, knowing the grief journey they were embarking on, just as we did 15 months prior when Andrew died. I wanted so desperately to walk in and tell them I understood. That I have a son in heaven. That this journey is the most excruciating one they’ll ever endure and one that is so incredibly unfair. Instead, I just cried. Because I know that grief in such a raw form. I was thankful this time that I was walking to see my living child, but I knew that his lung issues and episodes could have very well ended in another demise. That I could have another falling leaf on my door.

Inside the NICU doors.

In the NICU, B was undoubtedly the biggest baby among the six others. The others were all super preemies and B was the only one close to term. Ironically, most of them were not on oxygen because they were given the steroid shot to develop their lungs before birth. One of my nurses in Mother-Baby told me that they had three cases of TTN babies in the NICU that week alone, so it’s not uncommon. However, the other babies in the NICU were there mostly for maturity issues. They needed to grow to term before being released. We watched another baby come and go in the NICU after also having an episode. She was stabilized, thankfully and was released. But to hear the panic alarm and the neonatologist and other NICU nurses rushing to get another baby was awful. Since I was not by his bedside when he had his episodes, it scared me to watch the process unfold as if it were my own child.

Friday, February 24th. The next day.

We had a social worker come by our Mother-Baby room to talk with me about PTSD. She said it sounded like I probably had some of it creeping in since we have a history of loss and now a traumatic experience of our second son being born with complications. She wanted to know I had support in place—that I would be okay. How someone with such strength and independence became someone who must struggle and lean on others for emotional support is hard to swallow. To know I’m listed as a person to watch is even worse.

Friday also marked the day of B’s echocardiogram on his heart. They were hearing a slight murmur which is common in newborns, but because he was having lung issues, they wanted to rule out any connection to heart problems as well. Because they only perform these ultrasounds on specific days, we went ahead with it. We held B’s arms and soothed him for the entire process of an hour. It was painful to watch our son being prodded like that, but thankful to hear that the only detection was the normal valve that shuts on its own once the baby is born. Check that off the list of potential problems. Phew. The rest of the day was a blur. 


Saturday, February 25th.

At 2:00 a.m., B was released from oxygen completely. He had been being weaned during the 24th and was finally oxygen-tube free by our 3 a.m. feeding on the 25th. It was such a joy to see him not only breathing on his own, but free of that darn oxygen tube. Of course he still had his feeding tube as the NICU nurses insisted he was not eating well—and in fact he was not. He needed to improve his eating and be off oxygen without any episodes for 24-48 hours before they were willing to release him to go home with us.

No more tube! Yay!
But I still have this stupid tube. Get it out. Please.
Discharge day. Fighting to stay.

In the meantime, I was being discharged from Mother-Baby… the place where I was meant to be recovering but seriously felt totally recovered hours after giving birth (no joke, I could’ve gone for a jog). We had nowhere to go and most certainly were not willing to leave our second son at the hospital by himself. I could not show up pregnant for the third time at that hospital and leave for the third time without my child. I just couldn’t. And go home to an empty home again? Not going to happen.

The OB from my practice came in to see me in Mother-Baby and said he would not perform B’s circ until he was out of the NICU. However, when we went in to see B at his next feeding, the circ had been performed (sans drugs—this doc doesn’t use them). Our concern was that now that B was off his oxygen, he had to perform well at feedings before they would release him. But what baby is interested in downing a bottle (especially a preterm one, no less) that just had a circumcision? In addition, he was receiving his Hep B shot that day as well and we felt doomed from the start. We wanted him eating and the NICU required a certain amount in 30 minutes and made it very clear that if he didn’t “pass”, they would not be discharging him.

He fed well without a tube, but after his circ was feeling a little exhausted. The NICU nurse was incredibly rude (though the majority were SO wonderful and there is no doubt to us that they saved his life) and came over yelling at us and telling us that we clearly were not reading his cues and that they would be taking the last 9ml and putting it through the feeding tube. The kid just had a circ and a Hep B shot! I’m not sure I’d be hungry either! We were so frustrated because as we know it, he’ll eat when he feels like it. At this point we felt like we needed to give him an exact amount and no more at feedings—just so we could be discharged. We felt like we had to withhold more food if he wanted it because then he might not feed as well for the next meal (big lunch, small dinner… was our concern). That last 9ml potentially cost us another day in the NICU because he had to wait a full 24 hours and only be bottle fed in order to be discharged. 

So now he's eating. And no longer has TTN. Time to go home?

As of Saturday, he was no longer on oxygen, was eating without a tube, and was stable for over 24 hours… yet he was not being released. We told the NICU that we did not intend on leaving the hospital and placed a complaint with the lead charge nurse of the hospital for the behavior of the NICU nurse who was treating us as though we were inept… despite us being at every single feeding he had and her only being there for a 12-hour shift. We had the patient advocate in our Mother-Baby room and the lead nurse assuring us that although we had to check out of Mother-Baby by midnight, that we would not be kicked out of the hospital. The NICU nurses (though not the grouchy one) pulled together and told us we could stay from 12 a.m.-7 a.m. in the NICU conference room. It had a loveseat, two chairs, a coffee table, and a floor. It was also 5 steps from the NICU doors. We immediately checked out of Mother-Baby and schlepped our stuff into the room. You know, the room where they tell parents their child is terminal. It was awful knowing this, but we simply had nowhere else to go and home just was not an option. We were not missing a feeding and we were not leaving our son behind. We slept restlessly in the room and then moved our things to the hospital lobby and stashed them behind a couch before B’s next feeding. 

Why not just stay in the Ronald McDonald House?

The hospital has a Ronald McDonald House that was set to open in January… but obviously it was still not open despite the statue of Ronald in the lobby, a big sign up, the ribbon cutting being reported (with pictures!) in the paper, and everything. Apparently some bureaucratic document had yet to be signed to officially open its doors. Super. Here we are staring at Ronald in the lobby of the hospital and napping on the lobby couches. 
There's Ronald... now where's the house?
Camping out.
Bye, Bye NICU - Sunday, February 26th.

Our new day nurse was once again, the grouchy nurse! We told the lead nurse that we would not have her around our son anymore, so she had her apprentice taking care of B instead. She was being so incredibly nice to us after we placed our complaint. We still aren’t sure if she knew we complained. Maybe she learned to respect us more for caring so much for B? For advocating for him and taking charge as parents? We were absolutely the most involved parents in the NICU. Either way, we asked the apprentice on Sunday when our son would be allowed to come home. We stated the case that he had been eating off the tube (except that 9 measly ml they insisted he needed of which he immediately vomited up—who isn’t following his cues now?!), had been off oxygen for more than 24 hours and was stable, had no heart condition per his Echo, and was within normal limits of jaundice. What more did he need to pass on their scale and why were we, his parents, being left in the dark? Where was this magical checklist he had to pass that we weren’t familiar with? When asked, the nurse told us that she didn’t think it was likely he would be coming home with us that day.

Cue the anger.

Ray started becoming very vocal at this point. Right in the middle of the NICU with all of the nurses and parents around, Ray started yelling about how they were keeping us out of the loop, how they were forcing B to food that he did not want through a tube, and that the NICU is a business and that they obviously need to fill beds. Yikes. It was definitely a moment of desperation. Surely we know that those nurses and neonatologists saved B’s life. We are thankful they were there and for all the Level III resources they had to care for our son. But at this point, we just wanted to know what else our child needed to do in order to be considered “normal” again. Not feeding well is a newborn issue—not a NICU issue. A potential for jaundice is a newborn issue as well—not a reason to keep a child in the NICU. Another nurse who we didn’t love either (there were 2—the rest were awesome) yelled right back and told him that if we took B home, he’d end up in pediatrics because he was acting like a 36-weeker. We asked to speak with the neonatologist on duty. He was no help. He walked over and stated his jaundice and feeding was keeping him from being discharged and offered no support in his words. He was tested for jaundice every day and was not given the bili blanket or lights because, as they said, they don't treat for something that is not a problem. Well, if it's not a problem, then why isn't he home with us? Most parents whose children develop jaundice can rent a blanket and be on their merry way.

That afternoon, a new neonatologist was there and ready to speak with us. He made sure to explain that as long as B was feeding well for a few feedings, he would release him. He also told us that he’d like to see a less strict feeding schedule (what a concept to eat when you’re hungry and not exactly every 3 hours!) and to allow B to eat as much as he wants, whenever he wants. We were thrilled with this news, as it appeared someone finally understood our concerns and wanted our child to experience a normal schedule. We came in for our 3 p.m. feeding and he fed like a champ. 

Final field trip before B came home to live with us. To Target, of course.

We left the NICU and headed to Target for some baby items, as we were determined he would be coming home with us that evening. It was my first time out of the hospital walls since Wednesday when we were admitted into Labor and Delivery. Once we arrived back, we walked through those doors talking about how we were about to go take the “final exam” to be given rights to take our kid home. It was a huge slap in the face to feel this as we’d been trying to bring a baby home and be somewhat normal for 2 years now. We felt as though others were considering us incompetent as parents, yet every other child with “eating issues” is able to leave Mother-Baby with their parents after having that perfect rooming-in experience without any more than a “congrats, you can do it!” attitude. We wanted to feel a pat on the back from the hospital staff and the encouragement we so desperately deserved. We decided I would be the one to take the “final exam” of feeding B in front of them for the last time. 

Final exam canceled. You're free to go.

We spent that entire day on Sunday just kissing major butt. I was asking nurses their best techniques for this and that, reading ALL of the paperwork I received about newborn care (despite feeling equipped on the majority of it) in the chairs as B slept. Ray was reading The Economist to show he was intelligent and hopefully the NICU nurses would see we weren’t a couple of incapable, young kids. When we walked into those doors at 6 p.m. for his “final exam” feeding, they basically told us we could take him. We aren’t sure whether we passed the test with our behavior or if they just wanted to get rid of us… or if B really did convince them that he was fine to go home. But regardless, we were being discharged and would finally be bringing home our baby. The grouchy nurse took over at this point and could not have been nicer. We don’t understand it, but we just didn’t care at this point. We wanted out. Within an hour, we were on our way home with B strapped in his carseat in the back seat of our car. Coming home. 


The grouchy nurse had parting words for me as Ray pulled up the car:

“Just remember. Your kid is not sick, so you can treat him as normal as possible. All of his cultures, blood tests, and ultrasounds have come back negative and other than eating and being jaundice, he is totally normal."

What a concept. I seriously don’t know when the switch was triggered, but she all of a sudden realized that he was fine and that he needed to be coming home. Confused. As we drove away, we felt like we were making a jailbreak. Like they were following us to monitor or take B away. It was such a terrible experience to feel, once again, like we weren’t capable of handling things with our child. In order to give us the “full experience”, they brought a wheelchair and wheeled me out (despite being totally fine to walk) to the lobby for our final farewell—like they do for all the mothers leaving Mother-Baby. They took us out the same way we left without Andrew—when I was wheeled out with a bag full of mementos and without a baby. It was surely a numbing experience, but thankfully we were occupied with the idea that we were finally leaving the NICU. 

Under one condition.

Of course not without strings attached. The grouchy nurse told me about 5 times that we HAD to take B to the doctor the very next day to have them check him out for jaundice. It was a complete waste of a co-pay as we knew he was within normal levels and not a lot was going to change within 12 hours, but we obliged just to have our kid home. Like we suspected, the doctor told us he was fine and just to make sure he was spending some time in the sun, eating well, and pooping well. Our 2-week appointment is scheduled for Thursday.

He's home, y'all. He's freaking home.


Sunday, December 18, 2011

Preparing for Flip

Flip's what we call Andrew's little brother. He's been called that since the very beginning when we saw his very active arms and legs during ultrasounds. He and Andrew both seemed to love their hands near their faces during ultrasounds.

Since I'm not quite ready to reveal the name just yet (TBA January 2012), I'll keep with calling him what we've called him since the beginning. Since he's set to make his appearance in about 10 weeks, we're attempting to get used to the idea. I said attempting. Because what we're feeling is completely foreign and unnatural. With Andrew, we were free as birds. The excitement was easy and the prepwork was a breeze. Now, every purchase or process is considered and researched and re-researched and made with great hesitance.

I spoke about our decision to choose cord blood banking for Flip. We pulled the trigger on that one just about a week ago. Also, I wanted to thank all of you for adding your experiences or explaining the choices you made in choosing whether to (or not) bank the blood. After our purchase, we received a package in the mail.
That was definitely something surprising. I guess that although we cashed out a bunch of money to a cord-banking company, I didn't expect to receive the medical package (for the blood) in the mail via FedEx. It made things feel very real. I'm really going to deliver this baby. He really does exist and he really will be coming out of my body at some point. I'm still struggling with the idea that he'll actually leave the hospital with us alive, but at least I'm to the point where I know he'll be here in a matter of 10ish weeks. We selected the cord blood company we did for a variety of reasons:
  • Chicago-based banking facility - while not necessary, it was nice knowing they were super local. They also have banks in NY, CO, UT, IN, FL, MA, NJ but can store for any state.
  • Same accreditation as Cbr, the highly advertised company I mentioned before
  • Backup generators
  • Done more successful transfers than most cord-blood companies
  • Reasonably priced
We also have purchased things here and there that we changed our minds about from Andrew's pregnancy to now. For example, we originally had a very basic baby monitor. Who needs a baby monitor? Women have been birthing children for thousands of years and without technology! Riiiiight. Scratch that mentality. We needed something more suitable for our needs as over-paranoid parents and chose the AngelCare AC401 Deluxe Sound Monitor. It tracks movement and sound.
We also don't intend on letting this child out of our sight and therefore decided a co-sleeper was the solution. We bought an Arm's Reach Mini Convertible Co-Sleeper, along with some sheets.
We already have a Baby Bjorn Active with the winter cover, but we also now have the Ergo baby carrier with infant insert like this one. The jury is still out about the stars... but I think they're cute. Not sure if Ray would ever want to wear the thing, but I'm pretty sure he'll wear anything once Flip arrives healthy and safe. We're both pretty crazy about the idea of babywearing. I even bought the Ergo teething pads for the handles.
We had a pretty hard time finding a thermometer we liked that didn't get terribly conflicting reviews and decided on this one after all. Again, we were so naive before in thinking that regular thermometers would be suitable for a newborn. No longer will we think that for something as simple as a $35 purchase.
In dreaming again, I've always secretly wanted two items that we didn't buy for Andrew because I didn't think we needed them (again with the minimalist mentality) and I didn't want to spend the cash. One of those items was a high chair. We have a booster seat that I figured would be suitable since we also own the Bumbo.
However, I've always secretly wanted a Stokke Tripp Trapp highchair. Problem is, they go for about $300 with all the bells and whistles. But, the Wilsons are all about a great deal! We happened our way into a local high-end consignment store and found one for... wait for it... $35! It is the walnut color and in nearly perfect condition. It came with the older model insert (which can be replaced), but it's very functional and purchased at such a bargain. I'm convinced the store had no idea they were practically giving the thing away. Even looking on Craigslist, they don't go for anything under $100 used and most are vibrant colors. I've also secretly hated highchairs because they are bulky and full of fabrics and cheap plastics that would just create more for us to clean and make our house look overtaken by bulky kid furniture. This will definitely be a piece we'll keep in the family for a long time and it even came with the manual! And even better, it's been made the same way for about 40 years! It's a classic and very European-- as it is a Norwegian brand, after all. Yes, $35. I know. And of course we took every single piece apart and washed/sterilized it. All set to go for when we have a 6-month old. I. cannot. wait.
There's one last piece that I think I'll be holding out for a long time. Our stroller is nothing fancy. I was very specific about the carseat we chose, but I didn't care for the stroller. I was also overwhelmed by the prices and options that accompany such a purchase. I was more concerned with painting walls and getting that nursery in shape. Well, it's in shape and ready and been vacant for 21 months of waiting for baby at this point. But dreams are out there for one of these Bumbleride Indie strollers. Except, I already have two strollers and a snap-n-go that are plenty. I've told myself that instead of buying a single, I should just wait until baby #3 rolls around (2013 anyone?) and buy the double in this lovely number. I know, let's just get at least one live baby here before I purchase another stroller. Hah.
Who knows. I'll probably have a new love interest by then. That's a long time and quite a bit of gestating away... and that's only if our luck stops sucking as bad as it has. : /
We're just about out of things to buy for Flip that we feel are necessary. In the beginning I couldn't see us buying anything until I was literally in the delivery room-- but then I realized I needed something to distract me and what better to distract me then researching random items that will sit in a room and wait! Hah. It's only a little pathetic, I hope. There's always clothes to buy... but he has quite a bit, as is! We've purchased things randomly from BabyGap and Carter's, but only if there was a crazy sale or I had some awesome coupon (like today for example when I purchased two pair of socks, a onesie, and a bib for $2.34 from BabyGap). There's also this sweatshirt we needed to have so Flip can take after his Dad and play lacrosse.
Time is c-r-a-w-l-i-n-g and we're getting impatient. The nursery still looks like a tornado took a bunch of unused baby products and threw them all around, but we aren't at the place where we're ready to sift through and organize just yet. We'll see when I'm ready for that-- probably not until I have a clear induction date to set my sights on. We need more distractions and for these weeks to speed by like a bullet. This is definitely the hardest time since the initial weeks-- and even then I was in such denial (without the kicks) that it was easier to let go. I've never been more anxious in my life knowing he's viable, over 2 pounds (!) and likely able to sustain life outside of the womb. Of course he belongs inside the womb for longer, but I'd like to be put into a bubble until then. How did you other women (BLMs) do it? Because, wow.  
   

Monday, November 28, 2011

Soundoff: Cord Blood Debate

I spent my morning at the OB's office for gestational diabetes screening and the hemoglobin check. Passed with flying colors and only gained 1 pound in the last month. I don't suppose that makes up for the 20 I gained in the first 20 weeks, right? We talked about my crazy-lady tendencies and how we ended up at the L&D ward yesterday. And then she left us with something to think about: cord blood. My OB highly encouraged banking our cord blood for this baby. She went on to talk about the technology and stem cell research and cerebral palsy and how amazing things are being done to save lives and improve the quality of life with this stuff.

And of course she's probably getting a kickback from CBR, as it's the only company I had memorized myself from the mass amounts of marketing they do. If you've been pregnant in the U.S., chances are you've held their pamphlet in your hand at least once. Or a bag they print to hold your pregnancy magazines and swag from your OB's office. You know the little girl staring down at her belly button on the white and purple brochure. I am not endorsing them. As a matter of fact, we almost certainly will not use them ever because there are other, cheaper companies that are also accredited and reputable. Just mentioning them because they attack you with their brochures.

Now, I know that other than the possible kickback my OB might get from endorsing them, she also is looking out for our well-being and the well-being of this new baby. She is endorsing anything under the sun that might give us a fighting chance if we do end up a very small statistic again. But also, she likely feels an obligation to endorse something that could mean we don't lose another baby. She feels as though her success as an OB with our case of loss and hopefully life again is contingent on her giving us all the options and encouraging we do everything in our willpower (and pocketbook) to see that things pan out differently. She also wants the success of a healthy baby and wants to ensure that happens because she is a good person.

While pregnant with Andrew, we were bombarded by the blood banking companies and their mass amounts of paraphernalia. It turns out that no matter what, banking cord blood was out of the question-- obviously. But if we had a normal birth with a live baby as the outcome? We would've probably declined the opportunity. Why? Because it's so stinking rare to be in that tiny, itty-bitty percent of people who actually need the cord blood ever. This technology is relatively new anyway and as I've written before, we are were the minimalists. Who needs a video baby monitor, let alone to bank cord blood for something so statistically rare anyway?

Yeah, well now we're the statistic. We weren't convinced in all our research that cord blood was the way to go anyway-- as you can read all over the web and in print that cord blood may not even help your child even if they were in need of it. That certain races don't benefit as frequently as others in the use of their cord blood. That it will likely be a huge waste of money. 

And here we are now. We have lost our firstborn and his entire life. While it had nothing to do with our decision against cord blood before (like I said, didn't matter anyway), it sure did place us in a minority. A tiny statistic that doesn't happen to over 99% of people. But it happened to us. So this whole cord blood talk has found new meaning to us. I'll tell you now that we are almost certain to go for it this go-around. We wouldn't want that (still) slim chance of cord blood being helpful to inhibit this child from having a full life that continues on way past we are in our graves. We don't want the prospect of $3,000 (give or take) to be the reason our child cannot have critical stem cell research if needed. I guess that opens up our political views on that subject a bit. Try convincing a couple who lost a child not to believe in stem cell research. I scoff.

I've been reading a blog over the years of a woman whose son has cerebral palsy. He had a stroke at birth-- but his family saved the cord blood. They're thankful they did, because stem cell research may be the key that helps their child speak more clearly and live a more "normal" life. 

Advantages that I can see:
- potential life-saving possibilities
- potential sibling support
- stem cell research leading to better quality of life and/or saving life

Disadvantage:
- cost (upfront and annual)

When you've lost it all, you hardly want to let something so trivial as a few thousand dollars prevent you from having the best care and chance to survive for future babies. I'm not sure we'd be able to forgive ourselves if this baby was born and needed the blood at some point and we didn't based on cost. Plus, who needs new furniture anyway? Someday we're all going to die and leave it all behind. Perhaps though... it could mean our children will live a little longer or enjoy life more fully.

So here's where I open this to you... if you're not comfortable sounding off by name, please do so anonymously. We'd love to hear your opinion on the matter. Did you bank cord blood? This question is open to all and not just baby loss parents. Would you bank it again? Any stories to tell or companies you've researched or recommend? Do you still disagree completely with the process and want to sound off on that? This might also help fellow pregnant mothers/fathers who are interested or considering the same thing.